One week post CCNU dose #1

My husband took Toto to the vet yesterday for her post-chemo dose blood work.  Mixed emotions.  The vet was overall pleased with Toto’s progress.  Her cutaneous and subcutaneous lesions (our “visual” for how the CCNU is working) are obviously smaller…I had even seen that though I wondered if it was wishful thinking.  The vet was really happy with that because he said she’s responding more quickly than is usually seen.  My husband mentioned to him that she has days when she’s really tired and others where she’s more herself and he said, “Well, she has terminal cancer and she just recently had a major surgery.  She’s going to be tired.”  Why is it that it’s always nice to hear the obvious from someone else?  🙂  The vet also looked in her mouth (her gums and jaw) for sometimes apparently the CCNU can affect the mouth.  The mixed emotion stems from the fact that her white blood cell count is already down to 6000.  The vet explained that these will peak and trough through the treatment but if she’s down in two weeks (next scheduled blood work before next CCNU dose) we may stop the CCNU.  Yep…he used the word stop.  Not delay….not reduced dose….stop.  That’s a little discouraging, but I refuse to let it get me down!  🙂

FYI…we are changing her food to a low carb/high protein diet.  I haven’t read much about diet on here, but I’ll let y’all know how that goes.  We chose Hills Science Diet High Energy as a dry option and their “n/d” canned food to supplement.  Our vet says about half of the dogs he’s recommended the “n/d” for have GI side effects.  Toto being a golden and having a fairly sensitive stomach as it is, I’m not very hopeful.  LOL  But, we’ll see.  We’re just going to use that as supplemental and as a mix in occasionally.  Anyway…just a side note. 🙂  Starting that new regimen today.  Fingers crossed that I’m not cleaning vomit up frequently……..

Here we go….

Toto had her sutures removed today and suddenly I feel as if 20 pounds was lifted from my shoulders!  Her incision looks great and the vet was very pleased as well.  There’s some dried blood that must be 10-14 days old so I cannot WAIT to give her a bath.  🙂  We discussed chemo and protocol with the vet and, as I’ve stated previously, the chosen chemo for Toto at this point is CCNU.  Guess what?  It’s pretty cheap!  AND we get to give it at home!  Whew…..I hadn’t been clear on that.  I knew it was by mouth and not IV but I didn’t know we were going to be able to give it ourselves.  We will stick with CCNU until we’re finished with the cycle or until Toto’s body won’t let us any longer.  She had her first dose (8 fairly large capsules!) today about 2 hours ago and so far, so good.  I’m keeping my fingers (and her paws) crossed that all goes well and that her WBC count and hemoglobin stay up for the duration!  Some of her cutaneous cancerous lesions are notably larger in recent days so I’m happy we’re finally started on this chemo!

Some have said Toto isn’t a statistic.  I agree.  She’s my dog, my friend, my sweet pretty girl.  🙂  She’s not your everyday, normal golden retriever.  She’ll be the exception…not the rule.

 

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Two “steps” forward!!

My husband works from home several days each week.  Yesterday was one of those days.  I was cleaning and doing laundry, etc. and my daughter had a friend over and they were giggling and carrying on.  Toto is not a fan of the vacuum cleaner…or, well…any loud noises.  She never has been.  So the vacuum was going, the washer and dryer were going and the giggling was incessant.  I kept checking in on Toto who was in our bedroom and caught her out of the corner of my eye as she walked out and sat on one of our new necessary area rugs.  I greeted her and continued my vacuuming.  I turned back around and caught her again out of the corner of my eye halfway up our only flight of stairs that goes up from the main level of our house (where she has always spent the majority of her time) to the upper level where my husband’s office is and some bedrooms.  There are 16 steps and she was literally right in the middle on the 7th one!  I dropped what I was doing as I thought she was “stuck” there!  The steps are carpeted but there is hardwood at the bottom and the top and she usually (even when she had 4 legs) doesn’t even mess with the steps unless we are all upstairs playing XBox or Wii.  I met her on the steps and she was panting and obviously tired so I sat with her and petted her a while.  She then suddenly stood back up and climbed the rest of the way up!  She did slide and fall at the top, but she recovered well!  My husband, who had heard her fall, barreled out of his office and saw her sitting there panting and we both just praised her and praised her.  She then followed him into his office, had a bowl of water then jumped up on the couch in there!  What the heck was she thinking?  She spent several hours up there with him where it was quiet.  🙂  The way down was fairly uneventful as I had place rugs at the top and bottom in anticipation.  But she did it!  No one coaxed her, no one really helped her!  AMAZING!

Then…THEN…later in the day I decided to see if she wanted to go on a walk…just a block and back.  She came willingly into the front yard but didn’t want much to do with a walk.  I found a ball and decided to toss it to her.  She missed, but chased right after it! She brought it back, I grabbed it and threw it again…only about 3 feet, but she chased it again!  She then laid down and enjoyed the breeze as she always has loved to do.  She was so happy to be out and about.  A few neighbors came to greet her and even her favorite doggie pal from down the street walked by, though his owner and I thought it best to keep a safe distance at least until her stitches come out (Wally is a bit WILD!).  🙂

Good, GOOD, GOOD DAY!  She slept well last night and seems tired but still very happy today.  BIG DAY!  TotoOutside

Quick update….

Just wanted to post a quick update that Toto had a GREAT day!  After our scare last night I’m happy to report her incision looks terrific and has very little seepage.  Thanks so much for the helpful posts yesterday.  Boy, I’m glad to know her situation was somewhat “normal”.

She ate twice today which I’m THRILLED about and even came out with the family to watch TV with us this evening.  My cat is giving her fits (though he always has) because he really wants her to play like they always have but she’s just not up for it yet.  But being our wonderful sweet and stoic Toto, she’s just watching him act a fool and laying low.  🙂

Until someone sees this transformation first hand, there’s no way they know how amazing this can be.  I love Toto more than ever and my family even seems closer because we all love her so much.  🙂

Rollercoaster!

Thanks once again for all of the supportive and helpful comments!  I know y’all know how important they are as you’ve been there.  🙂

Yesterday I returned to work for the first time since Toto’s surgery.  My husband and kids were home with Toto and we pharmacists must open our stores on the weekends.  ;0)  Before I left, I noticed a bit of seepage from Toto’s incision.  Unlike some of your blogs I’ve read and photos I’ve seen online, our Toto has no bandages.  Her incision (which is somewhat horrific) was left uncovered and clean with (though I haven’t counted) nearly 100 stitches.  We’ve been using old t-shirts that I’ve tailored to kinda fit her to cover it up so we don’t have to stare at it and we’ve found it keeps her from trying to scratch at it.  Anyway, I asked Dan (the hubby) to call the vet if it got any worse…which he did.  To which they replied, “If it’s not dark it’s just seepage so you shouldn’t worry.”  The family left Toto alone for about 2 hours and when they returned home my husband could not get the bleeding/seepage stopped.  UGH!  I’m at work, unable to leave due to what I do and my husband is NOT a worrier!  Long story short, he decides to take her to the emergency animal clinic…the only place open I think in the state of WV on the weekends!  Longer story short, they removed a few stitches, they drain the incision, test it for infection (even though Toto is still on an antibiotic), stitch Toto back up – all without sedation – and determine that it was normal seepage that should be occurring but it had formed a pocket under the skin and had collected.  AAHH!  So, not a wasted trip and this morning she’s still seeping a little but now we kinda know what to expect.  And we were told to use warm compresses and to try to “milk” the fluid toward the incision to help it come out the correct way.

Whew!  My blood pressure meds had a workout yesterday!  Back to work for this weary pharmacist today, but at least I know my Toto is in my family’s very, very, very capable hands.  Very thankful for my husband.  I have no clue what mental state I’d be in without him.  🙂

 

Amazing Homecoming

TOTO IS HOME!

I’m simply amazed at how well Toto is doing!  She’s hopping around as if she’s been a tripawd all her life!  Honestly, I’m pretty sure everyone at the animal clinic is amazed as well.  In fact, the nurse who discharged Toto said she was doing so well that she didn’t have to stay the usual two days they normally keep amputees!  She hopped into our SUV unassisted (though the stinking e-collar was banging everywhere) and even hopped up our steps to get into the house…unassisted!  AMAZING!  I can already tell, even with her large incision, that she’s feeling better…less pain I’m certain!  All doubts are gone!  This truly was the best thing we could’ve done for her.  I realize there’s still work to do and a (hopefully) long road ahead but oh my gosh this is an amazing situation and we have one amazing animal.  We are blessed beyond measure!

Silver lining?  They’re everywhere.  Toto is home…Toto is more pain free than she has been for quite some time…we have an amazing story to tell about a remarkable dog.

Whew!  And the journey continue

s….Toto3

Waiting anxiously…again. :)

First let me say a gigantic THANK YOU for all the comments and good thoughts yesterday.  It was a strange day…as y’all know.

We went to see Toto last night.  She was trying desperately to get up and greet us but with the effects of her fentanyl drip and the slippery floor of her cage with an added blanket or two she just couldn’t manage it.  Our vet had to fly out somewhere, but the surgery nurse seemed very pleased with Toto’s progress and was happy she was trying to move!  She hadn’t been walked yet but they were going to do that as soon as we left.

I know someone said to not look at her incision site, but I couldn’t help it.  She has no bandages and the incision is SO much longer than I had anticipated!  Whew.  But, it’s clean and not leaking and looks like it’ll leave as small of a scar as possible.  Other than that, she seems very much herself!  Just a little drug-induced haze.  She looked at us as if she couldn’t believe we were leaving without her as we walked out but, of course, we promised her we’d see her today.

It’s now 10:00AM here and we were told we could most likely pick her up and bring her home at noon.  I’m keeping my fingers crossed but not holding my breath.  It all depends on how she does on her walks.

THANKS AGAIN for the input!  It is SO appreciated.  My friends and family have been great support, but I long for the advice and thoughts of people who have been there.  🙂

Gayle

Nope…no news is not always good news.

Received word around 2pm my local time that Toto was in recovery and awake.  The technician I spoke with said that the surgery was longer and harder than they had anticipated.  They took Toto’s leg and shoulder and then found a mass of cancer behind her shoulder blade that was the size of a softball.  The surgeon removed that and therefore Toto lost more blood than anticipated as well.  They are keeping her tonight and hopefully she will be home with us tomorrow.  We are going to visit her at 5:30 (it’s 4:30 here now).  I simply cannot wait to see her and pat her little head and hug her!  My husband keeps saying, “I want to go see my dog!”  🙂  They told us to give her 4-5 hours before we come so 5:30 is even pushing that time.  Thanks for the prayers and thoughts today.  It sure has been a “ruff” one.  I have so many more questions now.  Maybe that’s normal.  More cancer…seriously?  So they’ve pretty much found it everywhere.  Do we proceed with chemo?  Any thoughts?  Will she be in pain with the remaining sources of cancer?  I know only my vet and I can answer the questions, but it seems my family and I make tough decisions only to be faced with more.  So, my next question….anyone have a silver lining?  :/

No news is good news?

Sitting, waiting, trying to keep busy.

We are waiting on the phone call to tell us that Toto is out of surgery and in recovery.  I dropped her off this morning at 7:45 it’s now 12:09 our local time.  I think waiting is the hardest part.  And finding out when we get to go see her.

It’s not a terrific day…my car’s starter has been going bad and I had an appointment to fix it this Friday.  Well, guess when it decided to completely konk out?  Yep…as I was trying to leave the animal clinic.  So the hubbs rescued me and the car was towed to a local dealership.  Silver lining?  My husband has an unexpected day off to wait with me and my daughter.  We plan to work in our yard a bit to keep our minds occupied.  If Toto gets to come home tonight (big if) at least he won’t have to rush home to meet me at the clinic.

Gayle

 

Last day as a quadpawd

My girl will have her “spare” leg only one more day.  She is doing well…seems very much herself (besides the limp and dragging of the paw) and very happy.  Her fur is finally growing back on her bad leg but her belly is bare from where they aspirated the lesions on her kidneys and skin.  I fear we have already begun to spoil her rotten….nah…not a chance.  She’s finally gnawing on a rawhide bone I got her after her biopsy in mid-July as a treat.  My heart breaks for her but I know in my heart of hearts that this is the best decision for her.  I’ll definitely have more anxiety about her tripawd status than she will.  🙂  Thanks in advance for the words of encouragement.  I’ve come to depend on them.  🙂

The pic is my hubby showing our girl some love.  🙂

 

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